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Author Topic: compassionate care leaves
lagatta
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posted 07 January 2004 10:17 AM      Profile for lagatta     Send New Private Message      Edit/Delete Post  Reply With Quote 
The Feds are bringing in a new programme of compassionate care leaves - only for workers eligible for UI, natch (like the maternity leave programme). And I believe it is restricted to six weeks - so it seems useful only in the sense of helping a relative who is dying in the short term ... I suppose it is a first step, but little with regard to the many people who give up income and benefits for their own retirement to care for the sick, dying and frail. Usually women, and significantly, I'm also thinking of a cousin of mine, tending to his parents ... he is gay and in earlier years rather estranged from his large Catholic family. ).
From: Se non ora, quando? | Registered: Apr 2002  |  IP: Logged
skdadl
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posted 07 January 2004 10:31 AM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
Yes, like parental leave, this will benefit only small numbers of people who qualify for the EI system and are doing very short-term end-of-life care.

The Romanow Report made serious proposals about compensating people who have to stop working to become long-term caregivers. Right now, those people not only lose an income but also take a hit to their CPP averaging, whereas the Finance Dept has long allowed people taking parental leave to drop those years of lowered income out of the averaging.

Even Romanow, I think, was still tying benefits to EI, which obviously works for fewer and fewer Canadians, especially the self-employed and part-timers, who are, of course, disproportionately women -- as caregivers will also tend to be.

For people already caught up in these (often) catastrophic situations, activism is usually out of the question for the time being, for obvious reasons. And yet it seems so difficult to get others to take the problem seriously -- until they suddenly land in such a situation themselves.


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Michelle
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posted 07 January 2004 10:43 AM      Profile for Michelle   Author's Homepage     Send New Private Message      Edit/Delete Post  Reply With Quote 
It's true, skdadl. It's like any other issue. I was just talking to a friend the other day about prison and immigration activism, and we were talking about the same thing - most people don't care about it much because it doesn't affect them, and those people that it does affect are so involved in their own cases and getting through life in such a difficult situation. Not only that, but those who care because they have a loved one involved are stigmatized (eww! Your [so-and-so] is in prison!?)

I promised myself after supporting a loved one through an immigration minefield that I would keep fighting and staying involved in activism on that issue, as well as activism on the issues of inadequate provincial jail facilities in the Toronto area (which is where many people under threat of deportation are housed while their cases are under review). But life gets in the way.

I think there's a similar dynamic when it comes to activism around palliative care initiatives.


From: I've got a fever, and the only prescription is more cowbell. | Registered: May 2001  |  IP: Logged
skdadl
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posted 07 January 2004 10:51 AM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
The people I would really like to hear from are the people who know our tax system and also the ideological prejudices of the Finance Dept.

There is a real story there in Ottawa. The trouble is, few of us are expert enough to describe carefully just how and why the Finance gnomes are making life tougher and tougher for people who are already in misery -- people on disability pensions, eg.

We have had many many more debates about the sins of the provincial governments as they treat, eg, people on welfare. The economists know, though, that a lot of these problems really reach back to Ottawa and decisions made in Finance first of all.

I know just enough to know that there are problems there, and that they often are ideologically driven. Unfortunately, I'm no economist and can't develop the water-tight case that might begin to interest real voters.


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radiorahim
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posted 07 January 2004 10:08 PM      Profile for radiorahim     Send New Private Message      Edit/Delete Post  Reply With Quote 
Its kind of like a mugger stealing your wallet and then handing you back a looney.

That's pretty much what the Chretien/Martin Liberals have done to the E.I. system over the years.

quote:
The people I would really like to hear from are the people who know our tax system and also the ideological prejudices of the Finance Dept

Linda McQuaig took a look at this in one of her books a number of years ago. Sorry but the brain is a bit rusty and I can't remember the title...but a googlesearch should find it.

Various "tax experts" lobby for so-called "technical fixes" to the tax system and the Finance Department obliges.

Well who has the money to hire tax experts? The corporations and the wealthy.

And so the Finance Department and Revenue Canada quietly announces these "technical fixes" which just so happen to be massive handouts to the
wealthy and the corporate elites.


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Stephen Gordon
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posted 07 January 2004 10:32 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
quote:
Originally posted by skdadl:
The people I would really like to hear from are the people who know our tax system and also the ideological prejudices of the Finance Dept.

There is a real story there in Ottawa. The trouble is, few of us are expert enough to describe carefully just how and why the Finance gnomes are making life tougher and tougher for people who are already in misery -- people on disability pensions, eg.

We have had many many more debates about the sins of the provincial governments as they treat, eg, people on welfare. The economists know, though, that a lot of these problems really reach back to Ottawa and decisions made in Finance first of all.

I know just enough to know that there are problems there, and that they often are ideologically driven. Unfortunately, I'm no economist and can't develop the water-tight case that might begin to interest real voters.


I don't think economists at Finance are the enemy. Or at least, not the ones that I know. This may be hard to believe, but the economists who work at Finance are professionals, and they genuinely care about trying to make good and sensible policies. It's not easy, and the law of unintended consequences has humbled even Nobel prize winners.

My own experience is that they are very open to new ideas - much more so than their political masters.


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DrConway
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posted 07 January 2004 10:37 PM      Profile for DrConway     Send New Private Message      Edit/Delete Post  Reply With Quote 
Oh sure, that's why they were just fine and dandy with partial de-indexation of the old age pensions.
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Stephen Gordon
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posted 07 January 2004 10:46 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
Again with the ?

I'm not aware of a convincing defence against conspiracy theories - I can only ask you to talk to a real live Finance economist. They're easy enough to spot - they're the ones walking toward O'Connor and Laurier with a big red cape and a trident in their hands.


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radiorahim
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posted 08 January 2004 01:37 AM      Profile for radiorahim     Send New Private Message      Edit/Delete Post  Reply With Quote 
quote:
I'm not aware of a convincing defence against conspiracy theories

Ahhh yes. If one criticizes policies that just so happen to benefit the wealthy and powerful in our society one is engaging in "conspiracy theories".

Funny...just an hour ago on "Counterspin" heard one right-wing apologist for the Bush regime accuse a critic of engaging in "conspiracy theories".

There used to be communists under everyone's bed...now there are conspiracy theorists! No doubt all secretly funded by the Conspiracy Theorist International with headquarters in Conspiracy Theory-land


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'lance
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posted 08 January 2004 01:16 PM      Profile for 'lance     Send New Private Message      Edit/Delete Post  Reply With Quote 
The most succinct defence against the (empty, tired, and irrelevant) charge that one is a "conspiracy theorist" is simply to say "It's not a conspiracy. They just think alike."
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Stephen Gordon
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posted 08 January 2004 09:03 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
Okay, okay, I withdraw the 'conspiracy theory' crack. But read skedadl's post. "Finance gnomes are making life tougher and tougher for people who are already in misery". Topped off by "I'm no economist".

How is an economist who actually knows some of these gnomes supposed to respond?


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radiorahim
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posted 08 January 2004 09:24 PM      Profile for radiorahim     Send New Private Message      Edit/Delete Post  Reply With Quote 
Its simply this...economics is not an exact science.

And in general, (yes there are exceptions to the rule) economists carry the biases of the folks who sign their paycheques.


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Mandos
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posted 08 January 2004 09:31 PM      Profile for Mandos   Author's Homepage     Send New Private Message      Edit/Delete Post  Reply With Quote 
I think there are problems with the concept of economics per se. To summarize a fundamental problem: these things are a matter of moral choices. Any scientific statement you make in an "economic" context is fraught with implications about what you think these choices are/will be. So an economist with good intentions can inadvertantly produce conclusions (and policy recommendations) that reflect the moral choices and viewpoints in the model that the economist believes is scientific.

Somehow I don't think that the economists walking towards O'Connor and Laurier are necessarily malicious like some people around here seem to be accusing them of being. But somehow I don't think that they are political economists either.


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'lance
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posted 08 January 2004 10:25 PM      Profile for 'lance     Send New Private Message      Edit/Delete Post  Reply With Quote 
quote:
Its simply this...economics is not an exact science.

I don't accept that it's a science, period.


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Stephen Gordon
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posted 09 January 2004 08:52 AM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
Science is defined by method, not subject matter. Insofar as economics is studied using scientific methods, it is a science. If you study it using techniques appropriate to literary criticism, it isn't.

Is is true that economists cannot do experiments - but neither can astronomers. But we both do pretty much the same thing. We make hypotheses about how things work, derive their implications for what we should observe, and then look at the data.

[ 09 January 2004: Message edited by: Oliver Cromwell ]


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skdadl
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posted 09 January 2004 09:07 AM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
OC, you ask how you are supposed to respond to me if I am honest enough to admit that I am not an economist.

Well, try thinking of me as a human being who has, like many other human beings in this country, specific experiences with the Finance Dept in Ottawa.

I made a vague -- and imprecise -- reference above, eg, to the campaign against disability deductions (I should have said) that Finance has been carrying on over the last year-plus. Finance has been systematically narrowing numbers of categories and definitions, eliminating long-time claimants -- this development is well-known enough that the Globe and Mail has actually covered it.

I also know a bit about the history of departmental attitudes towards funding social housing in Canada. I'm not about to run through it all here, but certainly, attempts to scuttle such funding go back in that department to the 1930s, and are periodically manifest in others ways -- as in the section of the Charlottetown Accord that only I seem to have read , the department's laundry list of responsibilities they wanted transferred to the provinces. That list began: "Forestry, Housing, ..." Now, you think that we defeated the Charlottetown Accord, don't you? Just because we voted against it? Go check what has happened to Forestry, Housing, etc.

(And yes, there are political reasons for transferring programs you wish to kill to the provinces -- especially housing.)

Anyway, OC, I don't spend my life doing this kind of thing -- I am a citizen who is mugged by it occasionally, but mainly I am super-busy trying to create wealth and care for life -- which has become harder, of course, in no small measure because of our beloved Finance Dept.


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skdadl
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posted 09 January 2004 09:13 AM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
PS: OC, forgive me for being fussy, but you have caused unfortunate thread drift here. lagatta's introduction of the topic, an important one to many of us and one that will become much more important to many more in the near future, was perfectly clear. I hope you can speak to that.
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Rebecca West
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posted 09 January 2004 11:58 AM      Profile for Rebecca West     Send New Private Message      Edit/Delete Post  Reply With Quote 
One of the fundamental problems of EI is the low threshold set on insurable earnings, and the low amount of the payable benefit. You can only get by on EI - whether it's during the second six months of maternity leave or in the 6 weeks of the new compassionate leave - if you're affluent enough to begin with to take a huge hit to your income. You need savings or a parnter with another stable and adequate income, because they don't let you earn more than a couple hundred bucks a month to supplement the paltry benefits payments before they start deducting from said payments. And when you've just had a baby, or when you're caring for someone who is extremely ill, your expenses go up, not down.

Like lagatta said, like the 12 month maternity leave, it's a good start, but it only benefits those few who are already well off. Single people, single parents, people living from paycheque to paycheque, people who aren't eligible for EI, all of them are screwed. Again.

[ 09 January 2004: Message edited by: Rebecca West ]


From: London , Ontario - homogeneous maximus | Registered: Nov 2001  |  IP: Logged
Stephen Gordon
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posted 09 January 2004 01:32 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
skedadl: sorry about the drift. Maybe another time?

I have a student who is working on the issue of caring for the elderly at home as opposed to placing them in an institution. Health ministries are especially keen on this, since it costs a lot less when they're taken care of at home. And there's a case to be made that the elderly would be much happier staying at home.

That's clearly not the end of the story. It's by no means obvious that it costs less to care for the elderly at home. What happens is that much of the cost is shifted from the health ministry budget to the caregiver's shoulders. And I'm not just talking about lost income; there's also the physical and psychological toll as well. People might like to think that they would rather take care of an elderly parent rather than see them suffer the indignity of being placed in an institution, but the day-to-day reality is much different.

She finds that the cost-benefit analysis depends almost entirely to the cost to the caregiver. If the caregiver pays a heavy cost, shifting the elderly to home care is not a good policy, even if the health ministry saves money.

Basically, if savings generated by home care is enough to pay for income support, visits from health professionals and all the other things that would prevent the caregiver from being crushed by all that responibility, then it's a good idea. If it can't, then it's not.

This sort of programme seems like a first step in recognising that just because home care reduces the drain on on the health ministries budget, it doesn't mean that health costs have been reduced. They've simply been shifted, and they may even have increased.

As economists like to say, there is no free lunch.


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skdadl
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posted 09 January 2004 01:45 PM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
Oh, Oliver C, you couldn't know; not your fault.

But you are writing here to one of the crushed.

You are telling me about the last three years of my life. And I have to tell you: like everyone else who has not lived through this, you sound so hopelessly naive.

Did homecare cost both me and the province a lot less? For sure, given how stingy the homecare was. What is a nursing home costing now? A huge amount of money, and my sanity.

Mind you, my physical health was in jeopardy before, so it's much of a muchness, yes?

Ye. Gods. But. Canadians. Are. Stupid.

You are telling me there is no free lunch??? Shit. Tony Clement made that perfectly clear to everyone with a relative in an Ontario nursing home a year and a half ago. And I assume that Dalton McGuinty is about to make it a lot clearer. A lot.

And I live sick, and in terror.


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swirrlygrrl
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posted 09 January 2004 03:33 PM      Profile for swirrlygrrl     Send New Private Message      Edit/Delete Post  Reply With Quote 
My mother recently used up all of her vacation and banked overtime at work to take time to care for her parents (two surgeries, including one emergency that took my grandpa off the palliative list for now). She and my aunt (who spent a year providing most of the care for a husband with bone cancer - sadly enough, the only palliative nurse in the health district was their daughter, a horrible situation) were both bitter at and grateful for the new provisions - better than nothing, but not enough.

Since its obvious we won't get anything comprehensive in the near future I hate to resign myself to this being the best we can hope for. But I don't know what else to think.


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Stephen Gordon
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posted 09 January 2004 05:58 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
skedadl: The no free lunch remark was directed at health ministry officials who think that home care is a good way to save money, not at you. Please believe that I have only the greatest sympathy and respect for those who find themselves in these situations. My scorn is directed at those who don't think what you have had to go through is worth taking into consideration.

My wife's brother, and her only sibling, is mentally handicapped, and her parents are in their 70's. Next year, we'll be moving into their house and living as a three-generation family (we have 3 small boys). Right now, my parents-in-law are able to still care for my brother-in-law, but the next few years are going to see some traumatic changes. I'm not looking forward to it.


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skdadl
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posted 09 January 2004 06:12 PM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
quote:
better than nothing, but not enough.

swirrly, I think that that is a perfect description of what torments me every morning -- about 4 a.m.

How can I complain about what my love is not getting, when I know that what he is getting is better than what he would get elsewhere?

Oliver: Can you imagine what it feels like to wake up every morning asking yourself that question?

There are sections of the unit that used to be staffed by occupational therapists that are locked now. Why? One: the cleaning budget has been cut. Two: occupational therapists??? are you kidding??? In Ontario???

The contract with the visiting dentist has been cancelled. People's teeth FALL OUT OF THEIR HEADS.

Can you imagine, Oliver, what it feels like to watch that happen to someone you love?

Could all of you young persons please wake up? Soon?


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Stephen Gordon
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posted 09 January 2004 06:25 PM      Profile for Stephen Gordon        Edit/Delete Post  Reply With Quote 
quote:
Originally posted by skdadl:

Can you imagine, Oliver, what it feels like to watch that happen to someone you love?


Yes, I can - but then I wake up screaming. Anyone who has ever loved anyone has that nightmare. I'm so sorry that you have to live through it. And I'm outraged that somewhere, someone is saying to themselves 'well, we've saved money on that one'.

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West Coast Lefty
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posted 10 January 2004 02:16 AM      Profile for West Coast Lefty     Send New Private Message      Edit/Delete Post  Reply With Quote 
Those stories are just chilling and my heart goes out to skdadl and others who have lived through the wrenching experiences of providing home care to a seriously ill loved one.

I've heard that this EI announcement has caused a political storm in Quebec and that the Charest government is fighting it tooth and nail. Can Lagatta or other babblers shed light on what the issue is there? I know Charest wants to slash every provincial social program in sight, but why does he care if the feds want to take a tiny, pathetic baby step in the right direction?


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skdadl
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posted 10 January 2004 10:07 AM      Profile for skdadl     Send New Private Message      Edit/Delete Post  Reply With Quote 
Oliver C, I want to thank you for keeping such a measured tone with me when I was being so immoderate in my responses to you. I am sorry.

In some ways, I guess what I'm saying is that the experience is always going to be crushing no matter what we do, although the underfunding of everything is making it more crushing than it need be, I think.

Maybe some people relax more when they put a loved one in a home, but that choice can also produce new stresses. Even when the home is good, the separation itself feels like such a terrible interruption -- not death, but halfway there.

I can't be the first person who has fantasized about different kinds of buildings, where both the sick and the well could still live together a substantial amount of time, rather than just having visits. Not everyone would want the same things I do, but for me and for many partners, I suspect, just being able to sleep with your partner would make a world of difference, and would have a calming effect on the patient. Visits are a strain because you're "on" all the time, as you are not in a normal family situation.

I know that our institutions have improved dramatically over the last twenty, thirty, forty years. They are much more humane, much less cold and scary than the places I remember from my childhood. And yet they still are -- "facilities."

I dunno. We have a lot of improving still to do. It upsets me most, though, that all signs point to continuing political fear of debt and deficit, continuing resistance to tax reform -- which means that we're not breaking through to enough people about how big the task is.

[ 10 January 2004: Message edited by: skdadl ]


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